Hypermobility Spectrum Disorder & Hypermobile Ehlers-Danlos Syndrome Resource Hub
This resource hub brings together physiotherapy-led information for people living with symptomatic hypermobility, Hypermobility Spectrum Disorder and Hypermobile Ehlers-Danlos Syndrome. Use it to find clear explanations, practical rehabilitation guidance and links to the full eGuide.
Start here
If you are new to the topic, begin with What Is Hypermobility Spectrum Disorder? A Physiotherapy Guide. It explains symptomatic hypermobility, common rehabilitation priorities and where physiotherapy may fit.
You can also browse the complete Hypermobility & Ehlers-Danlos article collection. New articles are being added on diagnosis, exercise, fatigue, pain, instability, POTS, balance, work, surgery and other practical topics.
The complete physiotherapy eGuide
For people who want the information in one structured resource, the complete 227-page digital guide brings together education, rehabilitation, exercise and self-management. It includes 39 exercises across four adaptable pathways, clickable exercise videos, QR codes, trackers, worksheets and a healthcare passport.
What you can explore
Understanding symptomatic hypermobility, Hypermobility Spectrum Disorder and Hypermobile Ehlers-Danlos Syndrome
The Beighton score and what it can and cannot tell you
Physiotherapy, strength training, proprioception and balance
Joint instability, subluxations, dislocations and pain flares
Fatigue, pacing and energy management
POTS, orthostatic intolerance and exercise
Shoulder, knee, foot and ankle rehabilitation considerations
Braces, splints, taping and mobility aids
Work, reasonable adjustments, pregnancy and surgery
Building a realistic weekly exercise programme
Exercise and rehabilitation
Exercise with hypermobility is rarely about pushing as far as possible into a joint's available range. Rehabilitation commonly focuses on control, strength, tolerance, proprioception and finding a dose that can be repeated consistently. The most useful starting point depends on the person, their symptoms, current function and goals.
For practical exercise guidance, visit the Hypermobility & Ehlers-Danlos resource collection and look for the exercise, strength, proprioception and joint-specific articles.
Frequently asked questions
Is generalised joint hypermobility the same as Hypermobility Spectrum Disorder?
No. Joint hypermobility can be present without causing significant symptoms. Hypermobility Spectrum Disorder is used when hypermobility is associated with clinically significant symptoms and other diagnoses do not better explain the presentation.
Is Hypermobile Ehlers-Danlos Syndrome diagnosed with a genetic test?
At present, Hypermobile Ehlers-Danlos Syndrome is diagnosed clinically rather than through a single confirmatory genetic test. Assessment should be completed by an appropriately qualified clinician using the relevant diagnostic criteria and differential diagnosis.
Should people with hypermobility avoid exercise?
Usually not. Exercise can be an important part of management, but the type, dose and progression may need adapting to symptoms, instability, fatigue, autonomic symptoms and current capacity.
Do I need to do every exercise in the eGuide?
No. The exercise pathways are designed as adaptable starting options rather than a requirement to complete every exercise. The most appropriate selection depends on current function, symptoms and goals.
When should I seek individual medical or physiotherapy assessment?
Seek individual assessment for new or rapidly changing symptoms, repeated significant injuries or dislocations, neurological symptoms, unexplained severe pain, concerning cardiovascular symptoms, or when you are unsure whether an exercise or rehabilitation approach is appropriate for you.
Keep exploring
This hub will continue to grow as the scheduled hypermobility articles are published. Bookmark the category page if you want one place to find the latest physiotherapy-led resources.
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